This topical and timely text provides valuable insights into the choices and experiences of palliative and end of life care for young people with cancer and other life limiting illnesses.

Table of Contents

• Participants
• Foreword
• Preface
• Acknowledgements
• Abbreviations
• Palliative and End of Life Care for Children and Young Adults
• Defining palliative and end of life care
• Challenges to the delivery of palliative and end of life care for children and young people
• Settings of care
• Transition from paediatric to adult care
• Children and young adults with cancer and place of death
• Preparation for bereavement and bereavement support
• Summary
• Home-based Palliative and End of Life Care
• Findings
• The inconsistency of community-based provision
• Death in a marital home
• Discussion
• Lessons for best practice
• Hospice-based Palliative and End of Life Care
• Findings
• Discussion
• Hospital-based Palliative and End of Life Care
• Findings
• Discussion
• Lessons for best practice
• Preparation for the End of Life, Bereavement and Emotional Support
• The bereavement needs of families
• Findings
• Discussion
• The Implications for Policy and Practice
• Access to services
• Transition from paediatric to adult services
• Training and resource needs
• Best practice
• Contrasts and commonalties between the needs of families in the two studies
• Funding and the future
• Methodology
• Research into palliative and end of life care provision for TYAs with cancer
• Evaluation of children's hospice services
• Case studies
• Ethics
• References