This is a definitive, state-of-the-art resource on the vital pieces of perinatal and pediatric palliative care. Culling the most important new evidence-based research and findings from scholars and practitioners worldwide, it links theoretical knowledge and clinical practice to fill a gap in current information.

Table of Contents

• About the Authors
• Contributors
• Foreword Betty R. Ferrell, PhD, MA, RN, FAAN, FPCN, CHPN
• Preface
• SECTION I: PERINATAL BEREAVEMENT - Kristen M. Swanson
• Preface to PERINATAL BEREAVEMENT
• 1: My Absent Child: Cultural and Theoretical Considerations of Bereavement When a Child Dies - Patricia Moyle Wright, Rana Limbo, and Beth Perry Black
• Addressing Culture: A First Step in Bereavement Care
• Continuing Bonds: Re-Examining How Attachments Are Maintained After Death
• Posttraumatic Growth in Response to Loss
• Concepts Related to Bereavement Theories
• Conclusion
• 2: Applying Theoretical Frameworks to Research in Perinatal Bereavement - Sarah Kye Price and Dalia El-Khoury
• Attachment Theory
• Psychodynamic Theory
• Interpersonal Theory
• Cognitive Stress Theory
• Feminist Theory
• Emerging Perspectives: Trauma-Informed and Strengths-Based Approaches to Research
• Conclusion
• Case Study
• Focus Questions
• 3: Caregiving as a Theoretical Framework in Perinatal Palliative Care - Rana Limbo, Anthony Lathrop, and Jane Heustis
• Brief Historical Overview
• Identifying Families in Need of Services
• Layered, Progressive News Versus Sudden, Unexpected Realization
• PPC Research
• The Importance of Caregiving
• The Internal Working Model of Caregiving
• Caregiving in Bereaved Parents
• Clinical Guidelines: Caregiving in Perinatal Palliative Care
• Birth and Advance Care Planning
• Beginning the Journey With the Family
• The Role of the PPC Team
• Support During the Pregnancy
• Documentation
• Conclusion
• Case Study
• Focus Questions
• Resources
• 4: When an Expected Baby Dies: Maternal–Fetal Attachment in Context of Loss - Beth Perry Black
• Theoretical Roots of Attachment and Bonding
• Describing and Defining Women's Relationship to the Developing Fetus
• Narratives From Three Expectant Families With a Severe Fetal Diagnosis
• Conclusion
• Case Study
• Focus Questions
• 5: The Pushing On Theory of Maternal Perinatal Bereavement - Patricia Moyle Wright
• Pushing On
• The Process of Maternal Perinatal Bereavement
• Comparison With Other Models
• Clinical Implications of the POT
• Discussion
• Conclusion
• Case Study
• Focus Questions
• 6: When the Unthinkable Happens: A Mindfulness Approach to Perinatal and Pediatric Death - Joanne Cacciatore
• Mindfulness Approaches
• Meditation
• Concerns About the Mindfulness Approach to Traumatic Grief
• Conclusion
• Case Study
• Focus Questions
• 7: Complicated Grief and Perinatal Loss - Patricia Moyle Wright
• Defining CG
• Grief and the DSM-5
• CG and Perinatal Loss
• Treating CG
• Conclusion
• Case Study
• Focus Questions
• 8: Lesbians, Parenthood, and Reproductive Loss - Danuta M. Wojnar
• LGBTQ Families in the United States
• Human Desire to Become a Parent
• Pregnancy Launching by Lesbian Couples
• Miscarriage Experiences of Lesbian Couples
• Conclusion
• Case Study
• Focus Questions
• 9: Early Pregnancy Loss During Adolescence - Sara Rich Wheeler and Marlene G. S. Sefton
• Adolescent Growth and Development
• Integrated Theory of Bereavement
• Conclusion
• Case Study
• Focus Questions
• Appendix 9.1: Bereavement Resources
• Appendix 9.2: Tips for Talking With Adolescents Who Experienced a Pregnancy Loss
• 10: Understanding the Experience of Pregnancy Subsequent to a Perinatal Loss - Denise Côté-Arsenault and Joann O'Leary
• Theoretical Perspectives of Pregnancy
• Characteristics of Pregnancy After Loss
• Interventions for Supporting Parents
• Conclusion
• Case Study
• Focus Questions
• SECTION II: PEDIATRIC BEREAVEMENT - Mary Muscari
• Preface to PEDIATRIC BEREAVEMENT
• 11: Conceptual Approaches to Understanding Parental Grief After the Death of a Child - Margaret Shandor Miles
• Definitions of Grief
• Historical Literature About Parental Grief
• Conceptualization Models of Grief
• Parental Grief Models
• Discussion
• Toward Conceptualizing the Grief of Parents
• Conclusion
• Case Study
• Focus Questions
• 12: Theoretical Perspectives on Pediatric Palliative Care - Rose Steele and Kimberley Widger
• Evolution of Pediatric Palliative Care
• Standards and Principles of Practice
• Models of Pediatric Palliative Care
• Pediatric Palliative Care Specialization
• Conclusion
• Case Study
• Focus Questions
• 13: Hope, Hopefulness, and Pediatric Palliative Care - Douglas L. Hill and Chris Feudtner
• Theories of Hope and Hopeful Patterns of Thinking
• Hope in Health and Health Care
• Pediatric Palliative Care
• Future Directions
• Conclusion
• Case Study
• Focus Questions
• 14: Grieving the Traumatic Death of a Child - Wendy G. Lichtenthal, Geoffrey W. Corner, Corinne Sweeney, and Kailey E. Roberts
• Psychological Responses to the Traumatic Loss of a Child
• Theoretical Models of Adjustment
• Cause of Death: Does It Matter?
• Physical Health and Mortality
• Risk Factors
• Supporting Traumatically Bereaved Parents
• Conclusion
• Case Study
• Focus Questions
• 15: Remembering the “Forgotten Bereaved”: Understanding and Caring for Siblings of Completed Suicide Victims - Rebecca Kabatchnick and Beth Perry Black
• Completed Suicide and Its Aftermath: Background
• Reviewing the Literature on Siblings of Completed Suicide Victims
• Interventions
• Toward No Longer Shedding Tears Alone
• Conclusion
• Acknowledgment
• Case Study
• Focus Questions
• 16: Bereavement in Young Children With Siblings in Pediatric Palliative Care - Betty Davies, Camara van Breemen, Susan Poitras, and Eric Stephanson
• The Long-Term Nature of PPC
• Anticipatory Grief
• The Model: Shadows in the Sun
• Community Bereavement Resources
• Conclusion
• Case Study
• Focus Questions
• 17: Supporting Grieving Children - Andy McNiel and Donna L. Schuurman
• Definition of Terms
• How Children Understand and Process Death
• Understanding How Death Impacts Children's Lives
• What Grieving Children Need
• Talking to Children About Death
• Talking to Children About the Impending Death of Someone Close to Them
• Sharing the News of Death With Children
• Children's Involvement in Funerals and Rituals
• Cultural Issues Impacting Grieving Children, Teens, and Families
• Conclusion
• Case Study
• Focus Questions
• 18: Moments Matter: Exploring the Evidence of Caring for Grieving Families and Self - Rana Limbo and Kathie Kobler
• Background
• Relationship-Based Care
• Professionals Caring for Bereaved Parents
• Caregiver Suffering
• Conclusion
• Case Study
• Focus Questions
• Resources